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Gratefully Living with Hepatitis C

[captionpix imgsrc=”http://lucindaporterrn.com/wp-content/uploads/2013/03/two.jpg” captiontext=”Image courtesy of Photokanok/FreeDigitalPhotos.net”] For those who are reading this blog for the first time, on February 25th I entered into a 12-week clinical trial using triple test drugs sofosbuvir (formerly GS-7997), ledipasvir (formerly GS-5885), and ribavirin. Gilead is the sponsor of this study.  This is my third treatment. I have genotype 1a (don’t know my IL28B type) and stage 2 liver disease. I was a responder-relapser to 48 weeks of peginterferon and ribavirin.

Although I am now entering my 3rd week of treatment, my lab results are lagging. At my week 2 visit, I got my week 1 results. My viral count before beginning the study drug was over 8 million. After one week, it dropped to 52 (as in the number of cards in a deck). My liver enzymes are normal for the only time in 25 years other than during my second treatment.

I am tremendously grateful.

Next blog: Side Effects

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{ 6 comments… add one }
  • david cowley March 14, 2013, 8:06 AM

    Hi Lucinda,i am following your blog about your third course of treatment with great interest.I am hoping to get on a similar gilead trial here in the UK.I have waited 9 years since diagnosis for a non interferon regime to become available and this sounds very promising.All the very best with this course of tx,you sound like a true dragonslayer,good luck,David

    • Lucinda Porter, RN March 14, 2013, 2:53 PM

      Thanks for reading my blog and taking the time to comment. Hope you get a similar opportunity soon!

  • Karen March 14, 2013, 3:02 PM

    Hi Lucinda….I will be screening for the Gilead trial at the end of the month. Since this is your third treatment…how does it compare?
    All the best..

    • Lucinda Porter, RN March 14, 2013, 4:30 PM

      Hi Karen – I am excited for you. I’ll answer this in my upcoming blog posts, so if you don’t mind, keep reading. Keep in touch!

  • Sanjiv Syal April 18, 2013, 5:45 PM

    All the best Lucinda …you do deserve to get cured 🙂 …I am on the same trial for 12 weeks ie sofosbuvir & ledipasvir but without the Riba …this is my 6th attempt in 8 years ..I have relocated to the US from India for this …Sanjiv Syal

    • Lucinda Porter, RN April 18, 2013, 9:05 PM

      Amazing – most attempts I’ve ever heard! Please keep in touch and best to you too.

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