Activism

May: Hepatitis Awareness Month

May 1, 2013

Hepatitis Awareness Month begins today. For the next thirty-one days hepatitis activists, advocates, patients, consumers, mothers, fathers, sisters, brothers, children, and everyone who wants to make a difference will make an extra effort to increase hepatitis awareness. Here is one small act you can take that will make a huge difference. Urge every Baby Boomer [...]

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Hepatitis C: Getting the Facts Straight

April 15, 2013

I’ve been mulling over a recent post from one of the hepatitis C groups I belong to. Someone brought up the distressing subject of what to do about ignorance, particularly when the ignorance is coming from a medical professional. Trying to explain that she no longer had hepatitis C, her doctor refused to believe her, [...]

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The Hepatitis C Shout Out

January 17, 2013

There are moments when it feels like my heart can’t take much more hepatitis C angst. My liver, on the other hand, can take it, as my liver is my core power source. But back to my broken heart. I just read an article reported in an Australian publication, 6 Minutes of Interesting Stuff for [...]

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Hepatitis C Action Alert

December 26, 2012

This action alert is being circulated by the National Viral Hepatitis Roundtable. Note that the deadline for this is now January 4, 2013 Action Alert Urge Your House Representative to Sign Bi-Partisan Letter Calling on USPSTF to Change Its Hepatitis C Recommendation Representatives Bill Cassidy (D-LA), Michael Honda (D-CA), Hank Johnson (D-GA), and Barbara Lee (D-CA) are [...]

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The Last Chance to Ring USPSTF’s Bells

December 24, 2012

  Here is what I want for Christmas: Today is the deadline to make comments on the USPSTF website. Please ask USPSTF to upgrade its hepatitis C recommendations to a “B.” Wishing you a healthy, peaceful holiday, free from pain or thoughts of hepatitis C.     

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What I Know is Hepatitis C

December 16, 2012

All human beings should try to learn before they die what they are running from, and to, and why. ~ James Thurber Hepatitis C took a back seat as this week’s news from Newtown, CT hammered us. I can only imagine what it is doing to those more directly related, but speaking for myself, I [...]

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Hepatitis C Action Alert

December 5, 2012

I am dismayed by the recent draft recommendations issued by the U.S. Preventive Services Task Force (USPSTF) on hepatitis C testing. Compared to previous guidelines, the recommendations are a step up for those at high risk for hepatitis C (a grade “B”, meaning testing is recommended). However, the Task Force fell short of the Centers [...]

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Hepatitis C Advocacy

December 3, 2012

Think of yourself as on the threshold of unparalleled success. A whole, clear, glorious life lies before you. Achieve! Achieve! – Andrew Carnegie Hepatitis C advocacy is simultaneously the most wonderful and most frustrating avocation. It is frustrating when justice, commonsense, simple decency, and all the “shoulds” of life are disregarded. I am not going [...]

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A Message of Determination and Victory

October 16, 2012

Alan Franciscus is my longest and dearest friend in the hepatitis C community. We met fifteen years ago and he is my mentor, brother, and hero. Alan founded the Hepatitis C Support Project and the HCV Advocate. He is a testimony to the power of what someone can do after answering “yes” to a deep [...]

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A Message of Wisdom

October 7, 2012

When Tina Banwart agreed to write a guest blog, I was ecstatic. Tina writes an amazing hepatitis C blog, HCV New Drug Research. What she provides to the hepatitis C community is so good that I thank my lucky stars that we have her. The piece that follows is a consumer advocacy piece alerting those considering clinical [...]

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